Out of Sorts

Hi friends. I’ll be honest with you – I am not totally sure what to write about this week and definitely considered skipping blogging altogether. But if I skip one week, it’ll be that much easier to skip another, and next thing you know I won’t be blogging anymore, and that would be a bummer. This blog is something I’ve committed to keeping up and have followed through on for a long time, and I’m not ready to let it go yet. So, here we are.

I am out of sorts today. I didn’t sleep well last night – I woke up several times and had trouble getting back to sleep, I had weird dreams (and, just before I woke up, one really heartbreaking dream that I unfortunately remembered pretty vividly upon waking), at one point I moved in the wrong way and now I’m achy…I really just want to go back to bed and try again. That’s not an option, though, so here I am, at my desk, trying to get work done despite the drowsiness.

It’s been the sort of pandemic week where all the days blend together. And I’m just…tired. I think a lot of it has to do with the fact that on Tuesday I had to leave the house three separate times, which was pretty anxiety-inducing – I don’t go out much at all these days and am really trying to minimize risk/exposure, and three times in one day felt extraordinarily excessive. The first of those times was to go get some necessary lab work done, which meant taking two Lyfts and being in a clinic, and that was…a lot. (The good news is that all my labs came back normal. The bad news is that I still have no idea what’s causing the minor-but-annoying symptoms that necessitated the labs in the first place.)

Anyway, time is weird and possibly doesn’t exist, I want to go back to bed, and in and around all of that I’m super grateful that I have a stable job that I generally like and that pays me enough that we’re okay right now. It’s hard to feel motivated when the world is (in some places literally) on fire, but I’m trying. And that’s really all I can do right now.

I hope you’re all hanging in there. Wear your masks, wash your hands, and figure out how to vote early and safely. It’s a wild, scary world we’re living in – let’s do what we can to help each other out.

Tired

Hello, dear readers – we’ve made it to another Thursday. I don’t know about you all, but I am tired. I’ve been tired all week.

Last Saturday I picked up an overtime shift for work (we’re not particularly busy on the weekends so it was an easy way to make some nice extra money), and I spent the entire shift fighting the urge to go take a nap. That’s pretty much how I’ve felt every day this week.

Tomorrow I am not working (since Saturday is Independence Day here in the US, we have Friday off), but I have to get up early and go get an ultrasound of my thyroid done, so that’s obnoxious. Monday I went to the doctor to get it checked out, because it feels swollen and I’ve been showing a few other symptoms that could be associated with hyperthyroid, and this is the next step in getting that checked out. Which is good; I’m grateful the doctor listened to me and took me seriously. I just don’t particularly like going to the doctor anyway, and that is doubly true during a pandemic. Fingers crossed that the ultrasound gives us some answers.

I think between the anxiety around the thyroid stuff and the anxiety around…*gestures wildly at everything*…I just haven’t been sleeping all that well. Last night in particular felt like nightmare after nightmare and it was not especially restful.

But hey, I’m looking at a three-day weekend; that has to count for something.

Highs and Lows

Hello, dear readers. We’ve made it to another Thursday.

I feel like this week has been a bit of a mixed bag for me. I’ve been anxious and tired, and my allergies are pretty bad right now (cottonwood season gets me every year).

On the other hand, I managed the very exciting achievement of saving up and paying for my dream instrument this week. It should arrive this weekend, and I am over the moon about it. It’s a new octave mandolin, and it’s SO PRETTY:

I’m so excited!

We also managed to get wedding invitations finished and emailed out this week, so that felt like an accomplishment.

I am going to keep this short again, but I want to leave you with this article from the Washington Post that I found challenging but helpful this week. If you’re white, please take the time to read it and sit with it a while – educating ourselves is important, but anti-racism is not an academic exercise. Dismantling white supremacy and the systemic oppression of Black people requires action, and not just in the moments when the Black Lives Matter movement is front and center in our social media feeds. This is lifelong work.

Whoops

Hey there, readers! I’m late with this week’s post – sorry about that. The week got away from me.

The week has been a mixed bag. I ate something Monday that disagreed with me (possibly lettuce I didn’t wash well enough?), which meant I didn’t have therapy that night, which was…yeah, not the greatest. Tuesday I still felt off, so I ended up signing off from work a couple hours early. Wednesday was pretty nondescript, and today I ended up working over an hour past when I usually sign off, because my advice to a customer triggered a bug right before I was about to sign off. Sigh.

It’s also just been an emotionally tender week. COVID keeps creeping closer, and it’s scary and sad.

But tonight I made quesadillas and we watched Dolly Parton read a bedtime story, so that was nice?

I hope you’re all hanging in there.

What Day Is It?

Greetings, readers, from my home to yours. (I really hope you’re all at home. This is what we need to do to keep each other safe right now.)

It’s a weird time. The fact that I am working helps give me a bit of structure, but I’ll be honest, I’m having a hard time keeping track of my days. Everything’s sort of blending together. I missed my usual 9am deadline for posting this morning because I kind of forgot it was Thursday.

I’ve gotten my first two support tickets at my new job, so I’m actually doing work now instead of just reading about how to do work, which is a nice change of pace. I’m learning a lot and ending pretty much every day exhausted from the amount of information I’m taking in.

Yesterday was a beautiful day here in Chicago, so after work I ordered a pizza for pickup. As I walked to the restaurant, I was…alarmed by how many people do not seem to be taking the social distancing thing seriously. It was a toss up – some people that I passed were considerate and moved to the opposite side of the sidewalk or the grass so we could maintain 6ft of distance…a lot of people did not. I went pretty quickly from enjoying the beautiful weather to just being really anxious.

There’s a musician acquaintance of mine who lives in northern Italy. He’s been posting about some of his experiences in English for his American friends. The posts are incredibly sobering. I worry about him every day…and I worry about us, here in America, because we’re just not responding well to this crisis.

I’m worried a lot of the time right now. I worry about my nephew, who has asthma. I worry about my mom, who’s a nurse and at an age where she’s probably more vulnerable to this thing. I worry about my friends and family members who are out of work right now, or who are still having to go to work rather than working from home. I try not to worry too much about myself, but I’m allergic to many things outside right now, and every time I cough or sniffle I have to suppress the urge to panic.

But I’m also trying to find the light in all of this. We’re connecting with a lot of people virtually. Last weekend we had virtual brunch with a friend that we have regular brunch with every couple of weeks via Google Hangouts. I played Monsterhearts 2 with friends on a Discord server. We had a little song circle with Song School friends in California via Zoom. We’re in frequent contact with family and friends and I feel really held by the communities I’m a part of, even as I do my best to hold them. If anything good comes of this mess, I think it’s going to be a greater sense of connection. I am so grateful to live in this time where physical isolation doesn’t have to be social/emotional isolation. While it is hard to balance not being glued to a screen reading the news and using that screen to stay connected, I think it’s worth it.

I hope you’re all hanging in there (and staying at home). Take care of yourselves. Take care of each other. If we’re going to get through this, it’ll be together (from our own places of residence) or not at all.

I very nearly forgot to blog this week.

Yesterday was hard. Not because of anything that happened, really, but the whole day felt Sisyphean. I got out of bed late; it took what felt like eons to talk myself into going to work. I spent a lot of the day dealing with a pain flare-up. It was hard to be in my body. I got home and managed to get a few things done, but I was in bed before 8:30.

This morning I woke up still feeling pretty achy, so I made the decision to work from home. This meant that even though I made the questionable decision to crawl back into bed after turning my alarm off, I still had time to shower and take it a little easier getting ready for my day.

Now I’m sitting at my kitchen table with my coffee and my work laptop, getting ready to dive into some work projects, and I suddenly realized I hadn’t written a blog post yet, so here we are.

It’s been a long week, for sure. But here are a handful of things that have kept me going:

  • I finally saw Star Wars: Rise of Skywalker on Friday after work. I know some people found it disappointing, but I really enjoyed it. I cried, I laughed, I held my breath, I occasionally rolled my eyes. It was a fun ride and I found it a satisfying conclusion to the series I was raised on.
  • Saturday we got breakfast with a friend who lives in our old neighborhood. When we moved, we decided to set up a routine of breakfast dates every other weekend, and I’m so glad we did. I am trying to be more intentional about making time for friends. We have such a great constellation of friends and communities here, and I think when I’m struggling I sometimes lose sight of that.
  • I made it to Tai Chi class for the fourth week in a row. It feels good to be doing something to move my body aside from all the walking I do.
  • I wrote three songs last week. I’m getting increasingly excited for FAWM!
  • This weekend I have a couple of things scheduled with friends that I wish I saw more often, and I am very much looking forward to those.

Some Weeks are Harder Than Others

It’s Thursday, and I’m having one of those weeks where Friday and the weekend can’t come soon enough. I worked from home Tuesday and called off entirely yesterday. Some of this week is a mental battle – it’s been pretty grey and dreary outside all week, and it’s hard to feel motivated when the sun doesn’t rise until after 7am and sets around when I’m getting out of work.

A large part of the challenge this week has been physical, though. My hands and arms have been aching in a way they haven’t really before, at least not so consistently. Since my job and all of my hobbies involve my hands, this is…distressing. There have been things this week that I just haven’t been able to do, because it hurts when I try.

My partner has been super great and supportive while I figure out what to do about this and has stepped up where I’ve had to step back. I feel guilty, leaving so many things to him. It doesn’t feel fair, and that’s a hard thing for this Hufflepuff to get past.

I need to call the PT clinic I tried reaching out to online that never got back to me. It would be the most convenient possible location. But the thought of calling is exhausting.

The good news is that I started taking a mountain dulcimer class at the Old Town School last week, and it’s easier on my hands than most of the other instruments that I play. So I can still make music, even if I feel like I can’t do much else.

I know I’ll figure out better ways of dealing with this as time goes on. Right now, though, it is no fun and I am pretty cranky about it.

Five Good Things

Hello, dear readers. I’m feeling stuck for something to write about this week, so I’m going to default to the five-item list of some happy things from the past week:

  1. The EMG last Thursday went well. I mean, it wasn’t fun, by any stretch of the imagination, but it did at least rule out pinched nerves as the cause of the chronic pain I’m dealing with, so that’s good. The rheumatologist recommended PT (which I still need to follow up on) and some supplements to try, as next steps. I’m not exactly hopeful, but at least we were able to rule something out.
  2. We bought a Harry Potter LEGO advent calendar last month, and it’s been so fun to open it each day and build a tiny thing. (Granted, we have forgotten about half the days, because we’ve not had an advent calendar in past years and also it’s the season where we come home and are tired and not thinking very clearly. But still.) We’ve had a handful of characters, some Christmas trees, a turkey (with legs that pop off so the minis can hold them…it’s adorable), and a few other random things. It’s a nice source of joy.
  3. We’ve made so much soup the past couple of weeks! Since we’ve been under the weather and it’s been cold, soup has seemed like the correct course of action. I’m getting to use the techniques we learned in the knife skills class we took last month, which is making my food prep way more efficient. This is the recipe we’ve liked best so far.
  4. We’re finally both getting over this awful cold. My partner’s a few days ahead of me in recovery, so I’m hopeful that by the weekend I’ll feel much better. I’m already much better than I was last weekend, so we’re moving in the right direction!
  5. I wasn’t sure what class to sign up for at the Old Town School for next session (songwriting filled up suuuuuper early and I missed my chance), but I finally made a decision and signed up last night – I’ll be taking a mountain dulcimer class! My partner’s aunt had given an old dulcimer to my partner’s dad a while back, and he’s not using it much, so he said I could borrow it. I’ll pick it up when we’re there for the holidays. I have felt kind of stuck, musically, and I think learning a new instrument is a great way to get unstuck. So I’m excited about that!

Baby Steps

A few weeks ago, I saw a new-to-me rheumatologist. The last time I’d been to a rheumatologist to try to pin down the nature of the chronic pain I deal with was about two years ago, and it did not go well – he essentially only listened to the parts of my story that supported the narrative he constructed as soon as he saw me, which was clearly that I only hurt because I’m fat. (To which my primary care doc later pointed out: “That might contribute, but then why do your elbows hurt?)

I finally worked up the courage to try again last month, and it went better than I expected it to. The rheumatologist listened to my concerns, and seems committed to helping me address them.

Today I am going back for an EMG – a nerve conduction study. I am nervous (pun kind of intended) about it, mostly because I don’t entirely know what to expect. I’m afraid to get my hopes up about anything conclusive coming out of this. But it’s farther than I’ve gotten before with this process. So…baby steps forward.

I’m also trying desperately to fight off the cold that kept my partner home from work earlier this week. I can feel it coming on. I feel like I’ve been dealing with low-grade yuck like this for months, but it feels like it’s getting worse again this week. Sigh.

I replaced my phone this week. I had still been using an iPhone SE, and the battery was not able to keep up anymore – I basically had to recharge at least once in the middle of the day, every day. So now I have a shiny new iPhone 11. The cameras are bonkers, they’re so much better than what I had before. And it’s purple, which is delightful.

Having a Body

Sometimes, having a body is exhausting. This feels like one of those weeks.

Last Thursday I had an unexpectedly positive experience at a new rheumatologist’s office, and I’m feeling a little more hopeful that this one will actually try to figure out what is behind the chronic pain I deal with (as opposed to the last one, who basically just wrote it off as, “because you’re fat”). So that’s a happy thing.

Monday, in the middle of a staff meeting, I felt my back seizing up. I needed to stand but felt like I couldn’t (because everyone else was sitting and I felt the social pressure of not drawing attention to myself), and as a consequence have been in a not inconsiderable amount of back pain all week. It’s slowly working itself out, but it’s a process.

While this has been going on, I’ve also been trying to tackle multiple projects at work. I have a desk that can adjust from sitting to standing, and that’s been a lifesaver in terms of back pain management. But I’m finding the types of work I need to do are harder to focus on while I’m standing. On the other hand, sitting for any length of time makes my back stiff and sore. I feel like I can’t win.

Add to that the rain and temperature shift today, and I’m in a place of “everything hurts and I am exhausted.”

Thankfully, I have some bright spots to focus on this week. Most notably, I finally got to play the show I missed the night I had to go to the ER a couple of weeks ago. It was fun, more people than I expected showed up, and I even made some money in tips!