life

‘Tis the Season

/ Alyxander James / Leave a comment

Greetings, readers, from the shiny new Accidental Fudge site! Here’s hoping the links to these posts that populate to Facebook actually work now.

The holidays are upon us. This is, on the one hand, a lovely time of year – it’s festive and there are happy twinkling lights all over my neighborhood and we’re going to take some time off work to go visit family. On the other hand, this is a really challenging time of year – it’s dark around 4pm, my partner’s work is bonkers and leaving him exhausted, and there’s so much pressure to participate in the unfettered commercialism of the season. I feel like I’m never going to have money again.

It’s also the season where we’re all sniffling and pretending we’re not sick, which is a different kind of no fun.

Tonight, I am volunteering at the Old Town School. Tomorrow night, we’re wrapping presents and packing for our trip. Saturday morning, I’ll pick up the rental car, and then when my partner’s done with work, I’ll pick him up and we’ll start driving. I’m a little overwhelmed. It’ll be fun, and whatever we get done, we get done. But it does feel like there’s a lot to do between now and Saturday night.

Next week’s blog may be a little late, as we’ll be on the road on Thursday.

Whatever holiday celebrations you are or are not participating in, I hope your season is filled with love and twinkling lights.

Baby Steps

/ Alyxander James / Leave a comment

A few weeks ago, I saw a new-to-me rheumatologist. The last time I’d been to a rheumatologist to try to pin down the nature of the chronic pain I deal with was about two years ago, and it did not go well – he essentially only listened to the parts of my story that supported the narrative he constructed as soon as he saw me, which was clearly that I only hurt because I’m fat. (To which my primary care doc later pointed out: “That might contribute, but then why do your elbows hurt?)

I finally worked up the courage to try again last month, and it went better than I expected it to. The rheumatologist listened to my concerns, and seems committed to helping me address them.

Today I am going back for an EMG – a nerve conduction study. I am nervous (pun kind of intended) about it, mostly because I don’t entirely know what to expect. I’m afraid to get my hopes up about anything conclusive coming out of this. But it’s farther than I’ve gotten before with this process. So…baby steps forward.

I’m also trying desperately to fight off the cold that kept my partner home from work earlier this week. I can feel it coming on. I feel like I’ve been dealing with low-grade yuck like this for months, but it feels like it’s getting worse again this week. Sigh.

I replaced my phone this week. I had still been using an iPhone SE, and the battery was not able to keep up anymore – I basically had to recharge at least once in the middle of the day, every day. So now I have a shiny new iPhone 11. The cameras are bonkers, they’re so much better than what I had before. And it’s purple, which is delightful.

Having a Body

/ Alyxander James / Leave a comment

Sometimes, having a body is exhausting. This feels like one of those weeks.

Last Thursday I had an unexpectedly positive experience at a new rheumatologist’s office, and I’m feeling a little more hopeful that this one will actually try to figure out what is behind the chronic pain I deal with (as opposed to the last one, who basically just wrote it off as, “because you’re fat”). So that’s a happy thing.

Monday, in the middle of a staff meeting, I felt my back seizing up. I needed to stand but felt like I couldn’t (because everyone else was sitting and I felt the social pressure of not drawing attention to myself), and as a consequence have been in a not inconsiderable amount of back pain all week. It’s slowly working itself out, but it’s a process.

While this has been going on, I’ve also been trying to tackle multiple projects at work. I have a desk that can adjust from sitting to standing, and that’s been a lifesaver in terms of back pain management. But I’m finding the types of work I need to do are harder to focus on while I’m standing. On the other hand, sitting for any length of time makes my back stiff and sore. I feel like I can’t win.

Add to that the rain and temperature shift today, and I’m in a place of “everything hurts and I am exhausted.”

Thankfully, I have some bright spots to focus on this week. Most notably, I finally got to play the show I missed the night I had to go to the ER a couple of weeks ago. It was fun, more people than I expected showed up, and I even made some money in tips!

Anniversaries

/ Alyxander James / Leave a comment

Happy Thursday, dear readers!

I was so focused on my ER adventure last week that I completely missed the fact that last Thursday was my 6 year HRT anniversary. I’ve been on testosterone for six whole years! Which, incidentally, means this blog will hit its six year anniversary in a couple of weeks. I’ve blogged almost every week for six years, which is mind-boggling to me.

My therapist is constantly reminding me that I need to take time to recognize and celebrate progress. I’m not good at this. So today’s blog will attempt to do a bit of that.

A lot has changed in the past six years. My life has gained a welcome level of stability that wasn’t there before. I’m in a better place mentally than I was then. I had no idea when I started this part of this journey what would happen with my family. It’s been a trip…but I’ve ended up in a largely positive space. So that’s cool.

In addition to those personal anniversaries, there’s another important one coming up: Sunday will mark nine years since my partner and I went on our first date.

NINE YEARS. In two years we’ll have been together for a third of my life. It hasn’t always been easy, but it’s always been worth it.

In therapy this week we talked about how after three or so years in a relationship, we shift from thinking about that person as a new person in our lives to thinking of them as family. That means that unless we consciously work to rewire whatever dysfunctional attachment patterns we developed in our family of origin, we’ll perpetuate those in our family of choice. (On the one hand, breaking those dysfunctional patterns is overwhelming and difficult, but on the other, what a cool opportunity to strike out into new territory!) One of the things I’m working on is letting myself be cared for, even when I feel like I’m inconveniencing the people around me. I’m so grateful that I have a partner who’s so thoughtful and intentional about making sure I’m cared for.

What about you, friends? Any anniversaries, big or small, happening in your lives these days? I’d love to hear about them!

Whoops

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So it’s now 5pm on Thursday evening and I only just realized I never posted anything today.

In my defense, it’s been a bit of a week.

Tuesday night, I was supposed to play a gig that I was super excited for. I woke up Tuesday morning feeling under the weather, but determined to make it work.

It wasn’t meant to be, though. On my way to work I noticed on my Fitbit that my heart rate was high. As the day went on, it stayed up. The “active minutes” bar on my watch kept climbing as I was sitting at my desk. It was disconcerting.

When I got home, my partner double checked my heart rate, and the Fitbit wasn’t wrong. So I called off the gig, he called us a Lyft, and we headed to the emergency room.

Long story short, they sent me home about 4.5 hours later, after all the tests they ran came back normal. My heart rate went back down overnight, and it’s been normal the past two days. I worked from home the past two days, just to take it a little easier. I’m currently in the waiting room at my primary care doctor’s office for follow up.

It was definitely unsettling, and I’m still concerned that I don’t have any answers. Hopefully I can get some clarity from this doctor’s visit.

In happier news, Hamilton was fabulous on Friday! I’m so glad we got to go.

Under the Weather

/ Alyxander James / Leave a comment

It’s snowing in Chicago at the moment. Not much if it is sticking – mostly, everything is just cold and wet.

Generally I don’t mind snow. I like cooler weather – I run warm, and I like to show off the stuff I’ve knitted. Today, though, I’m a little cranky about it.

I’ve been getting over a cold for two weeks now. I have a cough that just won’t stop. I sound worse than I feel, at this point, but the cold, damp air isn’t helping anything.

We visited my grandmother for her birthday last Saturday. It was a good trip, and I’m glad we went…things weren’t perfect (she tried avoiding pronouns altogether, but when they did come up, she defaulted to the wrong ones for both of us, and at one point she introduced my partner to the staff as my “friend”), but they went about as well as I could have hoped. I hope I look as good at 92 as she does.

Tomorrow night we’re finally going to see Hamilton! I am very excited about that. The first time my partner played the soundtrack for me, I remember not being sure how I felt about it. But it was our main road trip music for our trip back to Minnesota one Christmas, and by the end of the trip, I was sold. It’s so good!

Grief is Messy

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It’s been an emotional week. On Sunday, I heard from my mom that my grandfather (who had been in a nursing home for a while and was on hospice) seemed to be fading, and my grandmother didn’t think he’d be around much longer. Monday morning I woke up just as my mom texted me the news that he’d died in the night.

I have been having a lot of complicated feelings about this loss. My grandfather was a sweet, gentle man in my childhood memories of him, and I looked up to him. He was also unwilling to come to terms with having a queer and trans grandkid.

The last time I saw my grandfather was at my brother’s wedding, a little over 7 years ago. We wrote letters for a while after that, attempting to reconnect. I tried to explain who I was becoming. He threw a lot of bible verses at me and tried to get me to come back to Jesus. After a particularly painful exchange, I eventually gave up. We stopped talking.

Several months ago I reconnected with my grandmother, and it went better than I expected it to. Unfortunately, by that time, we were losing my grandfather to dementia, and we decided that it was better for everyone to not try to have that conversation with him again.

I love my grandfather. I was also deeply hurt by him. In many ways, I’ve been grieving this loss for years, but there’s still a fresh element of finality to the loss, now. Grief is a messy thing. It’s not linear. There’s no timeline and no roadmap.

I’m also rather anxious about the funeral, which is happening on Saturday. I haven’t seen any of my extended family (aside from my grandma and one cousin who won’t be there) since well before I started transitioning. They all know – I sent out a zine over the summer reintroducing myself – so it won’t be a huge shock to them. But I’m still not really sure what to expect. I’m grateful for my grandmother’s support – she requested that I join the other cousins in attendance as a pallbearer, and I think the rest of the family will follow her lead in interacting with me. But it is stressful.

My grandpa was a storyteller. He was who I got my own love of storytelling from. I hope that now, released from his body, he’s able to be proud of the stories I tell and of the person I am.

Running Late

/ Alyxander James / Leave a comment

It’s Thursday morning, and I’m running late. Again. This has been a common theme of the past few weeks. I don’t know if it’s the changing weather or allergies fogging my brain or a general dissatisfaction with my job or all of the above, but it’s been a struggle to get up and get moving most mornings that I need to go to work.

We have entered the season of Jewish high holidays, so I get a bunch of extra days off from work for most of October. This helps. I had Monday and Tuesday off this week, and while I wasn’t as productive as I’d intended to be, it still felt good.

Over the weekend we did a very adult thing: we bought a couch, and it didn’t come from IKEA! It’ll be delivered in 4-6 weeks, and we’re excited at the prospect of finally figuring out our living room setup. My partner did a lot of work around the apartment the other night after I went to bed, and it’s looking much more put together now.

Dreaming

/ Alyxander James / Leave a comment

I’m in a weird, waiting space in a few big areas of my life right now. It’s not bad, necessarily, but it’s uncomfortable and I’m hoping I’m able to start moving again soon.

In the meantime, I’m dreaming, and I’m trying to figure out how to manifest some of these dreams. (I’m also thinking about how “manifesting your dreams” usually comes down to some combination of hard work and privilege.) What do I want my life to look like? What do I want to give more time and space to? Where is my focus shifting away from things that have taken up a lot of time and space historically?

I’m trying to stay on top of assignments for my songwriting class (which I’m super grateful for at the moment, because if I didn’t have those deadlines, I probably wouldn’t be writing much at all right now). There are dreams tied to that, too – when will I hit the point where I can save a little money to record an EP? Since 2012 I’ve written almost 175 songs; more than half of those have happened in the past two years. I’m sitting on a lot of material, and it would be nice to be able to put some of it out into the world in a way that feels more permanent than the (very) occasional live show.

I really, really hope I have some more concrete news to blog about soon. In the meantime, I am trying to learn to breathe through the discomfort of waiting. I don’t know that I believe that everything happens for a reason, but I am trying to see what I can learn from this liminal space. Patience is not always my strongest virtue, but I’m working on it.

Optimistic

/ Alyxander James / Leave a comment

Happy Thursday, dear readers! I feel like I have been confused all week about what day it is, and so I very nearly forgot to write something today, but here I am. Part of my confusion is, I think, related to the fact that I’m still fighting some sort of cold/allergy bullshit that’s fogging up my brain (and making me feel physically pretty blah). I’m working from home today because I woke up achy and feeling like my body temperature was all over the place, which is usually a sure sign that I’m fighting off something.

It feels like there’s a lot going on in my life, but a lot of it is at a stage where I can’t talk about it yet. Hopefully in the next couple of weeks I’ll have more on that. I will say that thanks to some of these secret goings-on, I am feeling more optimistic about many areas of my life than I have in a while, and that’s a really nice place to be.

In therapy this week, my therapist and I talked about how hard it is for me to find language to express what I need (which, as a generally language-oriented person, is suuuuuper frustrating). I’ve spent much of my life trying very hard to make other people happy, and in the process have neglected to learn how to recognize what it is that I want and need. I’m making huge progress here, though – my therapist pointed out that all the work I’ve been putting into creating safe space for myself is paying off, because I am finally getting to a place where I feel like I can try to name what I need instead of ignoring it. And it’s true. I’ve worked really hard to establish a sense of safety for myself, and it feels really good to have that work noticeably making a difference.

I’m not totally sure where I’m going with this post except to say that while the world is definitely still on fire and there’s a lot that I’m upset about on a global scale, things are actually going pretty okay for me personally right now. I feel like I’m getting closer to a place where I can move past just surviving and getting by and into engaging more with the world around me. So hooray for that!